So my weekend was quite eventful. I experienced my first grand mal seizure. Luckily my husband was home to take care of me and he did so perfectly! The paramedics were called as I completely lost consciousness and was vomiting. I now suffer issues with my short term memory which is becoming more apparent as I scan through entries on Facebook many times over again throughout the day because I forget what it all said. It is very frustrating. After the seizure I was taken to the Evergreen ER. This was at like 12am at night. They did the typical tests for something like this (CT head scan and blood work). The past few weeks, however, I’ve needed to go back into the ER for increasing headaches, dizziness and blackouts on standing, and overall pain and fatigue. At the ER I’m given IV paid medications, IV fluids and an array of anti-seizure medication. That is how I have been spending the last few days. Not entirely enjoyable.

Today and tomorrow I am scheduled for EEGs. Today was the awake EEG and tomorrow is the sleeping EEG. Not entirely sure how that will work out. Maybe I’ll just take my sleeping medicine at like 5am or something for my 9:30am test. No idea. Getting me to sleep on queue is really almost impossible. I have to drug myself up each night just to get to sleep in my own bed and I still wake up several times due to pain. Doing it somewhere else? Yeah, we’ll see how that goes. I also got scheduled for a celiac plexus nerve block next month. I feel it is too long to wait so I am seeing my pain doctor on Monday to discuss the possibility of skipping the block (since the TAP block was unsuccessful anyway) and go straight for the neurostimulator. That is our next step after the block anyway. We will see what he says, come Monday. For now I am just working on getting the EEGs done with.

Quick note: I updated the patient stories page as well as the “setting up TPN” page with a video on getting the feeding bag (TPN or HEN) into the Deuter backpack. Feel free to check it out! Have a good weekend and stay pain free!

Here is the video if that is all you want to see =)


Well, after 30 minutes, my block wore off; if it was even from the block (could have just been the numbing medicine wearing off). It was a bit disappointing. Even though I am used to GP treatments failing (it is super tricky to find treatments that work), I still held out a bit of hope that this one might help. It was diagnostic in nature, as I mentioned before. My doctor, Dr. Daniel Nelson, even told me in the O.R. before sedation that it was OK if the procedure didn’t work and that we were just trying to figure out where my pain was coming from. I have another appointment with him on Monday to discuss the next step. He wants to try a celiac plexus nerve block next, but after my own research, talking with my GI doctor and other GP patients who have had the celiac plexus nerve block, I feel that given the failure of the TAP block, it wouldn’t be successful either. I’ll push the spinal cord neurostimulator, and see if he agrees. It was first brought up by him a month ago and I feel now it is time to pursue it.

Also, in honor of Steve Jobs, I invite you all to watch his commencement speech from 2005. It is definitely worth your time. I hope you find it as inspiring as I did.

Happy tummy days and enjoy the upcoming weekend!

Taken from: http://www.kevinmd.com/blog/2011/10/10-reasons-change-doctors.html

The number one reason to seek a new healthcare provider is when the treatment you are receiving is not working. This may seem obvious but sometimes, people continue to remain with the first treatment provider they come into contact with because they “feel bad” that the provider may be offended and sometimes just fall into a pattern where they are going for “treatment” without realizing that their symptoms have remained the same or worse for years. The patient needs to care about him/herself first. With modern healthcare being as busy as it is today, the provider will likely be too busy to get upset about some patient attrition now and then.

The healthcare provider is more concerned about discussing himself that talking about you. I will never forget going to see an ear, nose, and throat (ENT) doctor once who literally would not stop talking about himself and his own accomplishments for the first 10-minutes of our interaction. It is a bad sign that the provider will not be sufficiently focused on the patient to provide proper evaluation and management.

The healthcare provider does not want to order tests that can aid in better diagnostic decision making (such as magnetic resonance imaging) because they “don’t want to fill out all of the forms.” This is different from not wanting to order tests that would not be helpful. If a surgeon did not want to fill out forms to order a test that can clarify the diagnosis, for example, would you feel confident that this person would take the time to take put the sutures in properly, or would they possibly, leave a scalpel inside of you? I would not want to take the chance.

You are rarely being seen by the doctor but are almost constantly being seen by a physicians assistant or nurse. Not that there is anything wrong with physicians assistants or nurses because they do play a very important role in health care, but if you are seeking the care of a specific healthcare provider and are rarely ever getting to see that individual (and you are not getting the care you believe you need as a result) this is a good sign that it may be time to make a switch.

The provider becomes defensive and angry when asked polite but challenging questions. No health care provider is always correct with diagnostic decision making or managing treatment. Patients should feel like they can have an open and honest discussion with the provider which includes asking questions about possible alternative diagnoses, treatments, or inquiring about information gathered from popular news sources. Provided that the questions are asked politely and without the intention of being antagonistic, there is no need for the provider to become upset. There is no need for a patient to feel scared to ask questions of their physician, nurse, psychologist, etc.

Feeling rushed. Healthcare is best when the provider is able to take the time to listen and understand the patient’s problems. When the provider gives off signals (e.g., frequently checking the clock or a watch, sighing when questions are asked, walking towards the door, cutting off questions) that he/she cannot spend much time with you, it may be time to consider seeking the care of someone who can.

When the provider makes decisions that turn out to be harmful. An example of this would be going to a pediatrician for a child with respiratory problems and constantly being told it is probably due to allergies despite the fact that the child has no known allergies and has not improved with allergy medications or a nebulizer. Due to the delay in taking the parental report seriously that the problem is likely more than allergies, the child develops pneumonia and is hospitalized. Situations like these are reasons switch providers. While no health care provider is free from making mistakes, this does not mean you have to stay under that provider’s care.

The provider has decided upon your course of care before evaluating you. This one sounds hard to believe but it happens sometimes. I had a situation once when I went to a doctor, he saw my chief complaint, and filled out two medical scripts before talking to me or evaluating me. Medication and other treatments should be based on a discussion with the patient and an evaluation.

The provider is not really listening to you. If you go to see a health care provider and he/she is too busy doing other things while you are trying to explain what is wrong with you, it is a bad sign that the provider is not paying sufficient attention to detail to provide optimal care. Examples include writing out another patient’s medical notes or prescriptions, typing text messages, or sending emails when the patient is trying to explain the reason they are there. While some people are good at multi-tasking, attention to detail decreases and errors increase when multi-tasking occurs.

The provider should be focused on you, and only you, when you are in the evaluation room together.

Lastly, research your healthcare provider on your state’s online licensing board’s website. You would be surprised how many are still practicing despite being the focus of serious investigations, reprimands, and recipients of prior disciplinary charges for actions that violated standards of the licensing board (e.g., improper note keeping, fraudulent billing, poor medical care). An internet search on popular search engines can also be helpful as some physicians move to another state if a license to practice has been removed from a prior state of residence. Online searches can also reveal prior criminal acts or charges. It is important to be careful with on-line searches, however, because you need to be sure that the person you are reading about is the same person as your health care provider and not someone else with the same name. In addition, be wary about information from health rating websites that are purely written by former patients, because they can be biased towards negative reviews which may not accurately reflect the qualities and attributes of the person you are seeing.

Dominic A. Carone is a neuropsychologist who blogs at MedFriendly.com.

It is good to follow these rules. Patient advocacy is very important. Always speak up if you feel something is wrong. You, ultimately, are in charge of your health. Do what is right for you and don’t be afraid to stand up to doctors. They don’t always know everything (even if they think they do!). Work together with your doctor to come up with a health plan that you both feel comfortable with. Happy tummy days!