So my weekend was quite eventful. I experienced my first grand mal seizure. Luckily my husband was home to take care of me and he did so perfectly! The paramedics were called as I completely lost consciousness and was vomiting. I now suffer issues with my short term memory which is becoming more apparent as I scan through entries on Facebook many times over again throughout the day because I forget what it all said. It is very frustrating. After the seizure I was taken to the Evergreen ER. This was at like 12am at night. They did the typical tests for something like this (CT head scan and blood work). The past few weeks, however, I’ve needed to go back into the ER for increasing headaches, dizziness and blackouts on standing, and overall pain and fatigue. At the ER I’m given IV paid medications, IV fluids and an array of anti-seizure medication. That is how I have been spending the last few days. Not entirely enjoyable.
Today and tomorrow I am scheduled for EEGs. Today was the awake EEG and tomorrow is the sleeping EEG. Not entirely sure how that will work out. Maybe I’ll just take my sleeping medicine at like 5am or something for my 9:30am test. No idea. Getting me to sleep on queue is really almost impossible. I have to drug myself up each night just to get to sleep in my own bed and I still wake up several times due to pain. Doing it somewhere else? Yeah, we’ll see how that goes. I also got scheduled for a celiac plexus nerve block next month. I feel it is too long to wait so I am seeing my pain doctor on Monday to discuss the possibility of skipping the block (since the TAP block was unsuccessful anyway) and go straight for the neurostimulator. That is our next step after the block anyway. We will see what he says, come Monday. For now I am just working on getting the EEGs done with.
Quick note: I updated the patient stories page as well as the “setting up TPN” page with a video on getting the feeding bag (TPN or HEN) into the Deuter backpack. Feel free to check it out! Have a good weekend and stay pain free!
Here is the video if that is all you want to see =)
